Test or not to test

OK, so some men are crying and many women are going “so what.” As you have read, actress Angelina Jolie had a double mastectomy to prevent breast cancer. She has the BRCA gene that makes it likely that she will get breast or ovarian cancer. Her mother died of breast cancer at an early age. The mastectomy was one step Jolie could take to prevent illness. I don't know, but I imagine since this was planned in advance, the cosmetic result should be good. Her film career is going to go on.

I have read that a Slate a commentator decided not to get the BRCA test despite her doctor urging her to because believe it or not, the BRCA gene is “owned” by Myriad Genetics. The only legal way to get a test for this, the most common mutation that causes cancer, is through Myriad. If you don't have the right risk factors, the test is not covered by insurance and women have to pony up $3,000 or so.

This is a shame (I am thinking worse) and I urge all lawmakers to change this state of affairs.

People just want to know if they carry the gene, not create a cure. Why do people have to suffer with uncertainty if there wallets are not fat? Men, if there is a history of breast cancer in your family, your doctor is going to watch your prostate carefully. There seems to be a link between the cancers. And men do get breast cancer. This is not just a pink-fringed women's issue.

Yes, Myriad should get credit and payment for coming up with the test, but $3000 a shot?

I type this wearing a special bra with a “breast form.” Yes, I have breast cancer. Fortunately, it was caught at an early stage, on my first mammogram. While the markers in the tumor are “HER+” (means recurrence is likely) everything is OK.

Now, my surgeon offered lumpectomy or breast-sparing surgery, but I decided to go with a modified radical mastectomy. The reason? Insurance. The “lighter” options require months of follow-up care with radiation and other treatments. I would be sick at work, take a lot of time off, and that could not happen.

You see, I have been seriously ill before, and have found that employers will look for someone who does not raise their insurance premiums rather than keep a sick employee. I could just imagine losing my at-work coverage in the middle of treatment.

Talk about up the river with no paddle.

Events proved me right, and I now am “cured” my surgeon said, but I have to go back for more frequent testing. Now when I get a mammogram I have to wait in that cold, exposing johnnie until a radiologist reads the “film.” It is always the longest half-hour.

Oh, and I did get BRCA tested. My grandmother and other female relatives died of breast cancer, and male relatives had prostate cancer. My cancer showed up at an “early” age. So the test was covered.

I would have found some way of coming up with the money as I have children, and knowing if the gene is in my line is vital to them. I will do almost anything to protect them.

But why at that time did I have to worry about money and comb through my family tree to “prove” that I was worthy of coverage?

Myriad, lawmakers, we are all looking at you.

He's dead, Jim

Forgive the flippant title. I could not resist.

Suspected Boston Marathon bomber Tamerlan Tsarnaev was buried recently in a Virginia cemetery. This is the end (?) of one of the nastier aftereffects of the Marathon bombing.

In a move that made this writer recall Joseph of Arimathea, Martha Mullen made arrangements to have the body buried properly.

Now Tsarnev is NOT Jesus Christ. Christ would have vehemently denounced Tsarnev's actions. The murder of innocents is not Christian, Islamic or in the tenets of any other major belief system.

Cambridge and Massachusetts officials feared that their graveyards would be the site of vandalism and demonstrations. This is understandable. While there are variations, Islamic law and custom prefers that the body be buried as soon as possible in the earth. Apparently there was no family money to return to body to Russia and Russian authorities stated the body could not be brought back.

But, the ugly scenes that played out concerning Tsarnev's burial played into terrorists' hands. People around the world saw how we reacted to the idea of his final resting place being on American soil. I am sure that right now, Tsarnev's story is being used to “show” that Americans are not God-fearing and respectful of others.

Yes, they are wrong. But I do thank Mullen and the people she reached out to have done this country a great service.

Now we can put the issue to rest. We can forget him, better still.

cowards

I’ve had a love-hate relationship with Boston (Beantown to natives) for a while. My parents grew up about 10 miles from the city in Lynn, Mass. and for them; it was the acme of all that was civilized.


The city is also called the “Hub” by locals, but no one else. Hub is for the phrase “Hub of the Universe,” by the way.

So a city with that much pride and pretension is easy to dislike. There are a lot of great things about Boston, and I love them all. But pretense is not one of them.

Yesterday changed some of that. Some idiot or deranged group decided to set off a pair of bombs at the finish line of the Boston Marathon.

Why?

Why did you decide to kill people who were doing nothing more than enjoying a sporting event? Who were cheering on relatives and friends? Or who were applauding those who were not running for laurels, but just to complete the 26.2 mile course? One of your victims, an eight-year-old boy, was at the finish line to cheer on his father. He died. The boy’s mother and another relative are hospitalized. Two others are dead, and more than 100 people are injured.

What did these people do to you? Anything?


By the way, one of the reasons the death count is so “low” is because you picked on the wrong city. While there are fantastic doctors and hospitals the world over, Boston has a concentration of some of the best. And there was a medical tent for injured marathoners nearby so those who you hurt could get care at once. No, it was not a fully-stocked ED, but I am sure it helped

If you thought you were attacking the United States, look at the pictures again. There were flags from dozens of countries there; representing the countries the runners were from. All were welcome at the race. All were competing in a friendly manner.

Why haven’t you claimed “credit?” I would think someone big and brave and as bad as you are would want the world to know who is responsible for bringing a great city to a standstill. What’s the matter? Willing to make “war” on innocent spectators and runners but too scared to let yourself be known?

There is one word for you: coward.

Dog day

Dog day ladies’ meeting






I’m a military brat. That means that while growing up, we would pull stakes up every couple of years (or months) and have a “PCS” (Permanent Change of Station) and move somewhere else.

While seeing new places and meeting new people was a plus, having to reestablish yourself all the time was not.

That’s the kid’s perspective. Imaging being the “dependent” (term military uses for service member’s family) wife.

The trouble is double when you are not living on a military base. No one understands why you are so . . . transient. Back in the 60s, Mom and Dad bought their first home. It was miles from the base, and Mom was having a party for some group of ladies or another. It was all terribly important that it go well, because Mom was out To Make An Impression. She was about to be inspected, by civilians no less, and she was determined to pass.

Mom made all the foods that wowed the other military wives, including her “color cloud” angel food cake. This was a from-scratch angel food cake that Mom would poke holes into and drop in food coloring, creating clouds of color in the cake.

Hey, it was the 60s!

Anyway, all was just about in readiness, laid out of the table, when Mom discovered that she was missing something. This meant that she packed me and my sister into the car for a hurried trip to the store.

When we returned, our fox terrier puppy, Pugs, had cake crumbs all over his muzzle. Sure enough, he had hopped up and taken a bite of the cake.

Mom went white. The ladies were due in minutes.

“Go outside,” she told me and my sister. One look at her face and we knew to hurry.

Mt sister and I played outside while the ladies arrived in a cloud of perfume. We came back in when they left.

Mom was humming to herself as she cleaned up. It must have gone well. No word about the cake.

Finally, I screwed up my courage to ask.

“Mom?”

“Yes,” she replied

“Wha-wha-what about the cake? The one Pugs ate?”

“Oh that,” she replied, “I trimmed the edges and told the ladies I had give you girls a piece.”

Mom always has an answer for everything.

Triumph

Triumph




OK, I just went through four days of bad food, no power, smelly cabins and human waste all over the place. Now I have to stand in another line to tell some so-and-such that I want a clean bed, a meal, and a hot shower? I don’t want a two-to-six hour bus ride wearing a bathrobe.

That was the fate of the poor passengers of Carnival’s Triumph.

Let’s not forget medical care. After four days at sea without proper food and dodgy (at best) sanitation, it seems likely that passengers and crew might be ill. From a public health standpoint, should they all have gotten a check-up?

I am glad to read that the passengers and crew of the Carnival Triumph got off the ship in one piece and (hopefully) healthy. It must have been a wretched experience.

In the interests of fairness, I and most of my family was aboard Triumph in December of 2010. We had a wonderful time and if I had the money, I would consider taking another cruise. Engine trouble can happen to any mechanical conveyance.

That having been said, I don’t think that cruise would be with Carnival. It’s not because any of the Triumph crew was bad, but rather the decisions made by Carnival management during the 2013 crisis.

I live near Mobile, so take what I say with that in mind.

First, Carnival brings the ship to Mobile. Good move. If Triumph tried to go to Mexico, there would have been passport trouble for about 900 aboard, and returning to Galveston would have been dicey.

(Dumb question: why were people allowed to board without proper passports? My family had to have all their papers in order when we sailed.)

Mobile offers a state-of-the-art repair facility, and the damaged ship will not have to be towed far to reach it.

But what about the people? Instead of being offered a hotel room (with working bathroom and chance to clean up) when they arrived the night of Feb. 14, most of the passengers where whisked away via bus to New Orleans or Galveston. Those who wanted to stay the night in Mobile had to talk to a Carnival representative when they got off the ship.

Right. A bus trip to New Orleans or Galveston. Or talk to some flunky. With no clear idea of what would happen next. I would hate to be on the bus. Worse, I feel for the folks who have to deodorize those buses.

So, what is wrong with Mobile, Carnival? We have hotels, a cruise terminal (that Carnival deserted in 2011) doctors, hospitals, restaurants and hordes of caring people who were eager to assist people in distress. We even have two airports that could be used to fly the passengers to their starting point.

In short, Mobile was ready, willing, and able to offer the passengers assistance. But somehow, we were not good enough.

A final insult: NBC News reported that one of those buses taking people out of Mobile broke down. I can just imagine the comments from the passengers.

Cruise on Carnival? I don’t think so.

Brazil Fire

Brazil fire


My sympathy to the victims and families of the Brazil fire.

That’s all I have to give. May grief lessen with time and may wounds heal.

I am taken back to Feb. 21, 2003. I woke up to my clock radio playing the news. The lead story was the Station nightclub fire that happened the night before. People had been killed and injured, and much was caught on camera, due to a news crew being there. Here’s a video of the tragedy: http://www.youtube.com/watch?v=SIetpe_KAJU

I almost levitated out of bed.

I was supposed to be at the Station that night. A female friend of mine, more interested in hard rock than I am, had tickets to the show. It would be a fun night out for a newly single me and my head-banging friend.

I don’t recall what, but something came up and I could not go. My friend could not either. The tickets went unused. Thank God.

Reading news accounts, it may be that some sort of sound-proofing foam was used in the Brazil nightclub. Fireworks used by the band set the foam on fire. The foam gives off toxic gas when it burns. So it was with the Station, and I am amazed that the lesson was not learned.

Take a smoky, choking atmosphere, fire, panic, too few exits, and you have disaster.

Will we never learn?

My family has been (lightly) touched by this sort of disaster before. My father told the story of how my grandfather was supposed to be at the Cocoanut Grove Nov. 28, 1942 for a Boston College football victory party. BC lost to Holy Cross that year and the party was cancelled.

The nightclub caught fire, probably from a light setting decorations alight, and 492 were killed. Access to emergency exits, and the club’s confusing layout contributed to the carnage.

My father said that he knew his dad was supposed to be going to the nightclub, and was glued to the radio as word of the disaster came in. He and his brothers were relieved when their dad walked in.

Please, we all go places with lots of other people. That is human nature. Just do as most of my family does now: scan for the nearest exit. Look to make sure the doors are not chained. If they are leave, and contact the fire authorities.

Who is laughing now

Boeing




Ok, sometimes, life hands you a steaming plate of delicious food.

Time to pig out!

No, in this case I want to eat slowly, enjoying each morsel to the fullest. I want every nuance of flavor. Besides, this dish has to cool a bit.

You have heard the one about revenge being served cold, right?

In this case I am enjoying the Boeing 787 mess. Big time.

Another course? Sure! Just let it cool a bit.

For those of you who do not live in southern Alabama, the city of Mobile, along with Airbus, was vying for an Air Force tanker contract a few years ago. Yes, Airbus is a European firm, but we are friends with Europe (at least we were last time I looked) and the planes would be built in Mobile. It would have been a boon to the entire area. And the last time I checked, Mobile is in the United States.

Boeing, after a long set of political moves got the tanker.

Part of what opponents of the Mobile bid spread was the thought that southerners, esp. the ones in Mobile are, well, deficient. There were comments about not trusting us to build trikes.

Well, Mercedes-Benz builds cars in Alabama, and so does Hyundai. I am not saying that every Alabamian is a Harvard professor, but most of us can learn, and do what is needed in a factory. If we need engineers, Auburn serves up some good ones. Just ask Tim Cook (CEO of Apple, and an Auburn grad). We can import them from LSU, if needed. My nephew graduated from there with an engineering degree and his company has no complaints. I guess we can make room for grads from MIT if we have to.

Airbus decided later to build airplanes in Mobile after all. Civilian craft will be assembled here after the plant is built. Work on that is coming now.

Yes, we in southern Alabama did not give up. And we impressed the people of Airbus so that they decided to build a civilian plant here in the Port City.

It’s not the Air Force contract, but I think the area won after all.

Now, if we could trust the Boeing people to build those tricycles. Those are my tax dollars at work!